Society ramblers put their best feet forward for rare genetic disorder charity

esbs’ staff members, their families, friends and even pets have undertaken a sponsored walk for a charity supporting people with Angelman Syndrome.

The event, which saw participants walk the five and a half miles, starting and finishing at the Black Horse pub in Market Bosworth, was organised to raise funds for AngelmanUK (previously known as ASSERT), our Charity of the Year for 2018/19.

Through their efforts, the ramblers managed to raise a total of £300 for the cause.

Comprised entirely of volunteers, many of whom are parents or relatives of children or adults living with Angelman Syndrome, AngelmanUK works to provide support and improve services to combat the effects that the condition has on day-to-day life.

First identified in 1965, Angelman Syndrome is a rare genetic disorder that causes severe learning difficulties and is characterised by a range of symptoms, such as speech impairment, problems with movement and balance, and happy and excitable behaviour.

A spokesperson for AngelmanUK said: “We are extremely grateful to esbs’ staff and families for raising this money on our behalf. As a small charity, all of our funding comes from events like these and every penny raised contributes in some way to helping support our families. It really does make a huge difference.”

Paul Tilley, Chief Executive of esbs, said: “It is always fantastic to see our team getting behind such worthy causes and I would like to congratulate them on the amount raised.

“The work that AngelmanUK does really is invaluable to supporting those affected by Angelman Syndrome and we hope the donation will go some way to helping them improve their services.”

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